| Location | Aylesbury, Buckinghamshire |
| Age | 9 months |
| Cause of Death | Genetic Condition |
| Date of Birth | 05/09/2007 |
| Date of Death | 16/06/2008 |
| Visitors | 8,906 since 18/06/2008 |
| Creator |
On 5th September 2007 we brought home our beautiful baby boy Seth. After 4 mths of 'normal' family life with him and his big brother Bailey we noticed Seth wasn't feeding properly and was being sick all the time. After numerous hospital admissions Seth began having seizures and he became so poorly that we ended up in intensive care.
A few days later we were told that Seth had a rare degenerative brain disorder and we would lose our precious son. Over the next few months we spent our time in Oxford children's hospital whilst the neurology team tried to find an official diagnosis.
Seth was tube fed as he had lost the ability to swallow and had no development. The most he could do was lay on his back and smile at us. A few weeks down the line we even lost his beautiful smile.
Eventually after every test possible Seth was diagnosed with ARX, a very rare genetic condition. So rare that there are only a few other children with this condition. Seth is extra special though as he is the first child in the world to have this specific form of ARX. No other child suffering from this has degeneration of the brain.
We came home to enjoy our precious baby boy in the middle of May and were supported by a fantastic team of community and hospice nurses and our family GP. Without there complete support we wouldn't have been able to stay at home. During the last few weeks of Seth's life he needed infusion pumps to keep his pain and discomfort at bay. He also had injections regularly. All this could only be done by our amazing community team.
On 16th June 2008 at 6am Seth lost his fight. Our beautiful baby boy was sleeping with us when his tiny body could take no more.
Seth was our second beautiful son. Bailey loved his brother and Seth responded to that with lots of smiles and giggles. He loved his cuddles and would lay on his daddy's chest for hours. He fought every day and would put up with whatever was thrown at him.
Sweet dreams baby boy. We only had you for 9 mths but every day was precious. You will live on in mummy and daddy's hearts forever.
Good night Seth, sleep well.
Mummy, Daddy and Bailey. XXX
A Birthday In Heaven, happy 4th birthday seth xxxx
A Birthday In Heaven - by Kris Smith
I heard you crying yesterday,
And felt your heart-sent love.
So I’m sending you this message
Now, from Heaven up above.
You’re wondering if I’ll celebrate
My Birthday (way up here).
I know you’re missing me today
I feel your essence near.
God planned a special day for me,
He told me with a wink.
He’d ordered me a special cake
(It’s Angel food, I think).
Balloons will fill the streets for me,
They float up through the clouds.
And we have lots of friends up here
That make us laugh out loud.
There is a Birthday carousel,
Jewelled horses ride the wind,
With music playing, oh so sweet…
The magic never ends.
I’ve made so many friends, you see
We laugh and play and sing.
We ride our bikes and play jump rope
And sleep in Angel’s wings.
We’ll have our cake and ice cream
And open gifts - SURPRISE!
But we don’t blow out our candles here
Instead, they light the skies.
With love from your little Angel XX
sweet dreams seth xxxx
♥ ☆ ♥ ANGEL DAY ♥ ☆ ♥
♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆
ANGEL DAY
YOUR ANGLE DAY IN HEAVEN
MANY TEARS WILL FALL FOR YOU
YOU TOUCHED SO MANY LOVING HEARTS
THERE'S SO MANY MISSING YOU
AS YOU NOW LIVE IN PARADISE
ITS HAVEN UP ABOVE STAY CLOSE TO ALL
YOUR LOVED ONES FOR IT'S YOU THEY MISS AND LOVE
♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆
BIG HUGS FROM ME TO YOU AND YOUR
FAMILY AND FRIENDS THAT MISS YOU EVERDAY
BUT IN OUR HEARTS FOREVER YOU WILL NOT BE
FORGOTEN YOUR TAKE CARE LOVE FROM ME
SYLVIE MOMMY OF SAMANTHA BELANGER
AND GRANDDAUGHTER OF ALBERT AND
MARIE-JEANNE BELANGER AND COUSIN
OF STEVE MORNEAU TAKE CARE GOOD
NIGHT BIG HUGS BYE FOR NOW ALL MY
LOVE SYLVIE
♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆
☆....☆....GOODNIGHT AND GOD BLESS ☆....☆....
☆....☆....☆....☆....☆....☆....☆....☆....☆....☆
....☆....☆....☆....☆....☆....☆....☆....☆....☆
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......... /... |`-.....___........
☆....☆....☆....☆....☆....☆....☆....☆....☆....☆
☆....☆...SLEEP TIGHT ..~SWEET ~DREAMS ☆....☆...
☆....☆....☆....☆....☆....☆....☆....☆....☆....☆
....☆....☆....☆....☆....☆....☆....☆....☆....☆
╔╗★
║║╔═╦╦╦═║╚╝╠═╦╦╗
║╚╣║║║║╩╣╗╔╣║║║║
╚═╩═╩═╩═╝╚╝╚═╩═╝ ♥
♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆
ಌ ಌ ಌ The angels light another star Each time there is a birth To celebrate each precious child The good Lord send to earth.ಌ ಌ ಌ
* ☆ * Can you hear me when I talk to you? Do the words I say ever make it through? Can you hear me when I talk to you? 'Cause I'd give anything if I knew
* ☆ *
❊ ﾟ ❊ Our tears are never far away we think of you every day the pain we feel is so raw and deep but our memories of you we will always keep ❊ ﾟ ❊
☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞
...............................ANGEL DAY
☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞
.............................Today is very special,
...........................It comes by once a year.
.....................It’s the day you went to Heaven
.......................And the day you left me here.
☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞
.........................I know I should be happy,
....................You’re in your Heavenly home.
.......................But instead I feel so empty
............................And oh so all alone.
☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞
........................Yes, today is very special
.......................The day you grew your wings.
..........................You left so very quickly
........................You didn’t take your things.
☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞
.......................Instead you left me crying,
.........................Yet hoping all the while
......................That someday I’ll remember
..........................This date with a smile.
.....................Copyright ⓒ2011Vicki Hansen
،،،،.http://www.vickihansen.wordpress.com/
☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞
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.. .. .. `\ \\.. .. .. . . .'| .|.. .. ith ℓღv؛..X ♥
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☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞☜♡☞
❊ ･ Always ｡ ❊ Loved ｡ ❊ * Always ｡ ❊ Missed ｡ ❊ ﾟ ❊ ･ .｡ Always in ｡ ❊ our Hearts ｡ ❊ ﾟ ❊ ･On❊･ Your ❊ ･ Special❊ﾟ Day❊･
* ☆ * .☆ * ☆ * ☆ * ☆ *☆ * ☆ *A TEAR FALLS FOREVER INSIDE A BROKEN HEART* ☆ * .☆ * ☆ * ☆ * ☆ *☆ * ☆
♥ Our tears are never far away we think of you every day the pain we feel is so raw and deep but our memories of you we will always keep ♥
♥ .•**•.. ♥♥ .•**•.. ♥♥ .•**•.. ♥♥ .•**•.. ♥♥ .•**•.. ♥♥ .•**•.. ♥♥.•**•..
╔══╗╔╗─╔╗╔═══╗╔═══╗╔╗──╔══╗─╔══╗╔╗╔╗
║╔╗║║╚═╝║║╔══╝║╔══╝║║──║╔╗╚╗║╔╗║║║║║
║╚╝║║╔╗─║║║╔═╗║╚══╗║║──║║╚╗║║╚╝║║╚╝║
║╔╗║║║╚╗║║║╚╗║║╔══╝║║──║║─║║║╔╗║╚═╗║
║║║║║║─║║║╚═╝║║╚══╗║╚═╗║╚═╝║║║║║─╔╝║
╚╝╚╝╚╝─╚╝╚═══╝╚═══╝╚══╝╚═══╝╚╝╚╝─╚═╝
⋱♰⋰⋱♰⋰ Angel Day ⋱♰⋰⋱♰⋰ Copyright Sandy⋱♰⋰⋱♰⋰
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♥ .•**•.. ♥♥ .•**•.. ♥♥ .•**•.. ♥♥ .•**•.. ♥♥ .•**•.. ♥♥ .•**•.. ♥♥.•**•..
God took you gently by the hand,
On wings of love to another land,
Nestled in the clouds up high,
Eternal life he gave you in the sky,
The ones left behind have broken hearts,
Oh they did not want you to depart,
One day you will all meet again,
Saving a place and no more pain,
On wings of love in Heaven above,
Our hearts are filled with lots of love,
Never more then a heart beat away,
Gone too soon,but loved and remembered
every single day.
♥ .•**•.. ♥♥ .•**•.. ♥♥ .•**•.. ♥♥ .•**•.. ♥♥ .•**•.. ♥♥ .•**•.. ♥♥.•**•..
Our Precious Child
._./''\._...•ღ***ღ•.*.•ღ***ღ•..
.\*•. .•*/.ღ*..*..لg؛ℓ..*..*ღ
./.•*.*•.\...•ღ***ღ•.*.•ღ***ღ•.
*.. ..*....*
GONE TOO SOON
♥ .•**•.. ♥♥ .•**•.. ♥♥ .•**•.. ♥♥ .•**•.. ♥♥ .•**•.. ♥♥ .•**•.. ♥♥.•**•..
♥ Its Your Angel Anniversary Another year has passed Although we cannot see you Our memories are here to last.♥ Thinking off you today Love Sylvie ♥
♥ We hold our angels in our heart, always to love and never to part. Happy Angel Day,♥
♥When you arrived in Heaven, You were given a golden key, It opened up the pearly gates, And your beauty for all too see.♥
seth xx
3 yr has past since you grew your wings there is not a day goes by when we all dont think about you,
you was such a brave little sausage, you toched the hearts of so many x
sweet dreams seth
*♥*~✝~*♥* A Golden Heart Stopped Beating *♥*~✝~*♥*
*♥*~✝~*♥* A Beautiful Boy At Rest *♥*~✝~*♥*
*♥* God Broke Our Hearts To Prove To Us *♥*
*♥*~✝~*♥* He Only Takes The Best *♥*~✝~*♥*
*♥*~✝~*♥* Sleep Tight Precious Angel xx *♥*~✝~*♥*
I can't believe your anniversary is approaching again baby boy. You are always in our hearts and minds. Big kisses from Millie Grace and Darcey Mae xxx
====HAPPY==================♪
==========BIRTHDAY====♫====
♫==============♪===TO=======
===♪=====♫=======♪===YOU===
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Thinking of you on your Birthday xxx
Happy Birthday In Heaven - by Winnie Lovett
"Happy Birthday Seth"
It's sure to be the best one yet,
Though you left us here behind.
Did you think that we'd forget?
Your cake this year, will surely be,
A beauty to behold.
With the icing made of Silver,
And the candles made of Gold.
Yes, your birthday in Heaven,
Will be such a grand affair.
And I know you'll look so lovely,
With a halo in your hair.
The Angels will come from everywhere,
To sing your birthday song.
And I know they'll be so happy,
That you've joined, God's Happy Throng.
No I can't send a card this year,
Or give a gift so fine.
So I'll just send a special prayer,
To that wonderful Son of yours.
Copyright of Winnie Lovett
A Special Child - by Edna Massionilla
A meeting was held quite far from earth,
Time again for another birth,
Said the Angels to the Lord above
This special child will need a lot of love.
Their progress may be very slow
Accomplishments they may not show
And they'll require special care
From the folks they'll meet way down there .
They may not run or laugh or play
Their thoughts my seem so far away
In many ways they won't adapt
And they'll be known as Handicapped.
So let’s be careful where they're sent
We want their life to be content,
Please Lord find the Parents who
Will do this special job for you.
They will not realise straight away,
The leading role they'll have to play
But with this child sent from up above
Comes stronger faith and richer love.
And soon they'll know the privilege given
In caring for this Gift from Heaven.
This precious child so meek and mild
Is Heaven’s Very Special Child XX
Copyright of Edna Massionilla
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There have been 719 candles lit for Seth.
